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National CMV Foundation Update

October 26, 2022

The National CMV Foundation, CPIC’s patient advocacy group, is pleased to share the article “Cytomegalovirus Affects More Than Hearing,” published by the American Speech-Language-Hearing Association. It is co-authored by CMV mom and speech-language pathologist Lisa Eickel, who also serves as a CMV Community Alliance Chair for the National CMV Foundation.

The article calls for more education and research on—and communication sciences and disorders treatment attention to—the long-term physical and developmental consequences of congenital CMV. One consequence is Late Onset Hearing Loss (LOHL). The National CMV Foundation is proud to participate in LOHL Awareness Week, which runs from May 4-10, 2022.

Finally, the National CMV Foundation is accepting applications for its Early Career Research Award! This $50,000 award funds innovative research related to maternal or congenital CMV infections. Early career researchers, including mentored pre- and post-doctoral trainees or junior faculty who have not been a principal investigator on an NIH grant, may apply. The deadline for online submission is 11:59 pm EDT on May 31, 2022.

The Congenital and Perinatal Infections Consortium (CPIC) is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). CPIC is funded under grant number U54AI150225 as a collaboration between NCATS and the National Institute of Allergy and Infectious Diseases (NIAID).

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