Latest News

2023 CPIC Pilot Recipient: Monika Dietrich, MD

The fourth Congenital and Perinatal Infections Consortium (CPIC) Pilot Project was awarded to Monika Dietrich, MD, an assistant professor in pediatric infectious diseases at Tulane University.

2024 CPIC Pilot Recipient: Megan Pesch, MD, MS

October 16, 2024

Charlotte Hobbs, MD, Named New Co-Lead of CPIC

October 16, 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29, 2024

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Neonatal Enterovirus and Human Parechovirus Viral Sepsis Over Time: What We’re Learning from a Natural History Study

November 21, 2023

David Kimberlin Receives 2022 Walter T. Hughes Distinguished Physician Award

November 11, 2022

Training Program for Clinical Research in Rare Disease Launches New Session

November 9, 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant